FINALLY Hope!!

I had only been diagnosed with vestibulitis, but after reading so many blogs from other vagina pain sufferers, I was beginning to wonder if I also had pelvic floor dysfunction and a problem with my Pudendal nerve. Then, I woke up last night at 3am with the most horrible vagina pain ever!! I laid there crying until I just couldn't take it anymore. Then I remembered a fellow vagina pain friend telling me that stretching helps relieve her pain, so I climbed out of bed and stretched for about 30 minutes. And sure enough, she was right!! I was finally able to go back to sleep. I have been wanting to go to a PT for a very long time, but I didn't think that I could afford it. After the pain last night, I didn't care how much it would cost! I just wanted to feel better. So first thing this morning, I called to make an appointment. To my surprise, they had a cancellation and were able to get me in today! The appointment went GREAT! The PT was wonderful and I felt very comfortable with her. She diagnosed me with pelvic floor dysfunction and pudendal myalgia. I know it sounds bad that I now have 3 vagina problems, but I was actually relieved! For the first time in over a year, I actually have HOPE!! I might not have to live with this pain forever after all! There might actually really be someone that can help me!

The Beginning....

I am feeling more confused now than ever!! I had finally reached a point where I thought that I had actually been properly diagnosed, but the more information I read, the more I wonder. After going to doctor after doctor for what seemed like forever, I was diagnosed with Vestibulitis. Now, I'm starting to wonder if that is really what I have. I have been on so many different trial meds that I have lost count, and I have even had 2 surgeries. Needless to say, I am still in pain. Some days I have horrible burning, and other days it is burning mixed with itching. There are also days where I feel as if I am not going to be able to control my bladder, and for the past 3 weeks, my lower back has been killing me. I was put on birth control pills at a very young age to regulate my cycle, and then after having my second child, I had a mirena IUC inserted. I had the IUC for 3 years when I started having my whohaa pain, so the idea of hormones causing my pain could be very accurate. I have also read that neurological disorders can cause it. I also fit that category. My grandfather had lupus, my father's sister has MS, and my mother's brother has Parkinson's, so neurological disorders run in both sides of my family. I have suffered from migraines since I was 14. I have had 2 MRI's, 3 EEG, and numerous other tests to try to find the cause of my headaches, but nothing was ever found. My pain started 2 months after finding out that my then 3 year old had a heart problem. So, I sometimes wonder if the stress of that mixed with all of the other things I had going against me is what started all of this.

Therapy

I have been thinking about starting a blog for quite awhile now. I have found many wonderful supportive women on here, and blogging seems to be amazing therapy for them! So, I have decided to give it a try. I felt all alone for so long. It has been so comforting talking with other women who actually really understand what day to day life is like when you live with constant whohaa pain!